Surveys

VBF has a number of surveys designed to help us study and learn.

  • VBF Survey

    In order to complete this valuable survey at your leisure, we have included a .pdf version of it for printing and mailing. To use the .pdf version, you must have a copy of Adobe's Acrobat Reader, which is available here.

    This survey is to be completed by the parents of children with hemangioma. The information will be used to provide summary data and will prove useful for future work by the VBF. All information will be kept in the strictest of confidence.

    VBFSurvey.pdf

  • Doctor Visit Survey

    VBF would like to assess your visit(s) or communication(s) with any doctor(s) regarding your quest to learn about a birthmark type, treatment options or prognosis. You do not have to put your name on this survey, but you need to put the name of the doctor(s) on the survey so that we may assess the quality of information that was provided to you and the manner in which it was provided. We will be sharing this information with the doctor(s) so that they can evaluate their manner of presenting this information to families affected by a vascular birthmark and the quality of that information. We believe that the doctors need to know how the families feel about their visits. We hope that based on the findings, they will view this as an improvement opportunity. We also want to use this as an opportunity to share with doctors who are doing an outstanding job. We ask that you fill out one survey for each doctor that you have seen. If you cannot remember the exact date of a visit, put the closest month and year that you can remember. If you had multiple appointments with this doctor please base your responses on your general experience with this doctor. If the experiences differed drastically for each appointment, please fill out a separate survey for each appointment you wish to evaluate. Fill out as much information about the name and location of the doctor as possible. Results will not be shared publicly, but will be shared with the individual doctors.

    VBF Doctor Visit Survey

 

Information for Parents

DOA Logo
Don't Forget!
Every Day is a Day of Awareness for VBF!
Visit the VBF International Day of Awareness Website:
birthmark.org/awareness


Good Search

What if the VBF earned a penny every time you searched the Internet? Now it can! GoodSearch.com is a new Yahoo-powered search engine, with a unique social mission... every time you use GoodSearch, money is generated to support the mission of VBF. Just go to www.goodsearch.com and be sure to enter the Vascular Birthmarks Foundation as the charity you want to support. The more people who use this site, the more money we'll earn so please spread the word! Go to http://www.goodsearch.com

If you think your child has a hemangioma Click Here...
hemangioma
If you think you or your child has a port wine stain Click Here...
Before and after of port wine stain
If you think you or your child has a venous malformation Click Here...
Before and after of venous malformation

Chapters of the VBF

VBF
VBF Europe
VBF Russia
VBF Spain
VBF Peru
VBF Latin American
VBF New Zealand
VBF Australia
VBF India
VBF Russia
VBF Asia
VBF Poland
VBF Philippines
VBF Vietnam
VBF Israel
Sturge-Weber Syndrome Community
SWSC-Canada

Partners

Anomalie Vasculaire Site for French speakers worldwide, and friend of VBF that offers support and information about vascular birthmarks


Publications for Parents:

  • VBF Vascular Birthmarks Brochure - Download and Print - A comprehensive brochure describing all vascular birthmark types, syndromes and treatment options. To print, click here (you will need the Acrobat Reader to view and print this document).
  • Doctor Visit Survey Have you been seen by a doctor to assess a vascular birthmark? Please click here and complete our survey. This survey will be used to provide feedback to the doctors about the information and treatment they provide to families affected by a vascular birthmark. Complete your survey and mail to Corinne Barinaga, c/o VBF Director of Information Services, PO Box 106, Latham, NY 12110.
  • Before you visit, email, or speak to a birthmark specialist, be sure to read our Checklist for Parents!
  • Dr. Rosen's Vascular Birthmark Information for Parents
  • Simple things you can do to manage KTS (Dr. Delfanian and Linda Shannon)

You will need Adobe's Acrobat Reader to open and print the pdf documents. If you do not already have it installed, you can find it here.

You will need Microsoft's Word to open and print the Word Documents.

RECRUITING SUBJECTS FOR A RESEARCH STUDY ON FACIAL BIRTHMARKS